Jay and Amber went to Hoco last night, and since Jay is a man of very little words I didn't get many details, other than he had a good time and enjoyed himself.
He totally humored me for this selfie. He loathes selfies, but agreed to just this one. Thank you, Jay. It made your mom happy!
Jay's hoco group. I always enjoy admiring the girls' dresses and the shoes!
Sunday, September 30, 2018
Diabetes, Stroke, Emotional well-being
On Sept. 26 my sister went to my mom's house, as she does every week day morning. Kim found mom unresponsive in her bed with a blood sugar of 500. Kim immediately called 911 and so began another few days in the hospital. That entire day was just bad! Mom was out of it all day until about 6pm that evening and her speech was terrible. Kim and I know that when mom's blood sugar is high her speech is affected, but as her blood sugar goes down, her speech improves. This was not the case on Sept. 26. We were worried and a series of CT scans and a MRI's were done to determine if mom had another stroke. She did. She suffered another stroke adjacent to her first stroke, very close to her language center. The 2nd stroke was much smaller (thank goodness) and did not affect her mobility (another blessing). As I write this today her speech is much improved, but she's headed back to speech therapy next week. She was speaking so well that speech discharged mom two weeks ago.
God is at work here and when these bumps in the road hit, He reminds me time and time again He is in control and we have a tribe of people praying for us and God has listened to those prayers. For example, all last week was just hard. Mom had fallen into an abyss of depression. My mom has never battled depression. There is no shame in depression, or taking meds to help with depression, but it's very hard for the people on the outside to witness the fall into the abyss and try to pull them ot of it. In fact, you can't pull them out of it. Only they can decide. A few things occurred last week that turned it all around. My mom's dear friend, Leslie, prayed very hard the night of Sept. 26, that not only would mom be better in the morning but that God would restore her emotional state of well being. Then Mary's mom, Joyce (who Mary says has a bat phone to God), stayed up all night on Sept. 26 and into the wee morning hours of Sept. 27 and prayed for mom. When I came into mom's room on Sept. 27 she was sitting up, smiling and talking (broken but we could understand her). And she laughed. Have you ever loved someone and witnessed them fall into a depression? Most people have but what hurt the most was not hearing my mom laugh. Then on Sept. 27 she laughed, like really laughed and Kim, Leslie and I laughed right along with her. It was the most beautiful noise I've heard in a long time and I doubt I will ever forget that sound on that day. Mom confessed to Kim and I just last night that she is praying again! Since mom's stroke on July 9, she has wanted to read her Guideposts everyday and she has wanted people to pray with her but I didn't sense she was actively engaged in her own intimate prayer life, until her confession last night. I believe God intervened this week to get our attention. Something feels different - like this was His way of helping mom accept where she is today and reminding her (and all of us) that He is in control.
We got mom sensors for her diabetes. Every minute of every day Kim and I can look on our phones and see what mom's blood sugar is. We've had this for four days and so far, so good. As we move forward our goal is to keep mom safe, healthy and happy. Whatever it takes to accomplish those things, we will do.
By the way, the picture included with this blog is the selfie I took of us the day we got home from the hospital, Sept. 28. God is good, all the time.
Saturday, September 22, 2018
One year
I haven't written about mom in awhile. On Oct. 9 mom will cross her three month mark for her stroke/recovery. How is she? Here's the good, the bad and yes, the ugly. The good is she is walking, and walking well. It's slower than what she would like but she's walking and getting around. Her speech is excellent. Sometimes an occasional word will trip her up. This week it's been the word numb. Ha! Her left hand has been numb when she wakes up and for the life of her she can't think of the word numb when she tries to tell me about it. Sometimes it's a puzzle but after we've listened to mom long enough we are able to piece together what she is telling us. Her right arm is a source of great frustration to her. It has movement but very little and she is very concerned she will never get movement back in her fingers. Moving on to the bad. The diabetes is just bad. The pump is annoying, but as I said to mom and Kim this week getting mom the pump was the right thing to do but it certainly was not the easy thing to do. Mom has mastered the pump in that she can enter her carbs and blood sugar, but Kim and I change her pump every 3 to 4 days and as long as mom has the pump, this is something Kim and I will need to do for her. We have no problem doing it, but it's another reminder to mom that she has lost some of her independence. And now the ugly. The ugly part is mom has felt really defeated lately and she is fixated on a one year time line. I think it's fair to give herself a year. She says if she's not fully recovered at the one year mark she is "checking out." I laughed and asked her, "Mom, I don't even know what that means?" She rolled her eyes and didn't say anything else until the next time I saw her and she said again she was giving herself one year or else! Kim and I encourage her a lot. The fat lady hasn't sung yet! But I'm also a realist. I've told her that if this is as good as she gets, that is okay and I know in time it's something she will come to terms with. It's accepting what has happened that is incredibly challenging for her right now. The bottom line is this. God restored her. It may not be to her satisfaction, but she is living alone in her own home. She will soon get her drivers license back. We are slowly understanding and trying to control the diabetes. She is able to communicate. She is surrounded by family and friends that love her. Life is good.
Saturday, September 15, 2018
My Whys: why I'm going to do what I do
Ever since my mom had her stroke and the Ausili's left I knew I was entering a new chapter in my life. A new chapter where I wanted to have a better handle over the decisions I was making, the whys of those decisions. Many times I do things and I wonder why am I doing it. Although it is true that with age I can answer this question more often than not, but still, I knew I needed and I wanted to make a list of my whys. As I thought about this this week I came up with a list and got to apply them this week. First I was going to start a bible study, it's the same bible study as I did last year. I really enjoyed it, grew in my faith and it was something I got to do with my mom, but this year it does not fall into my why category. Stay with me for a bit. Then last night there was a big high school football game. With every fiber of my being I did not want to go to that game and my nasty, tiresome issue with guilt crept in just a bit. Our school district is relatively small. Everyone who loves our school, and yes, I do love our school, was going to be at that game, cheering on our boys. But going to a high school football game does not fit into my whys. So what are my whys? I'll tell you and please keep in mind as I list these, they are not in order of importance. They all share in equal importance.
*Making every reasonable attempt to go to church regularly. This is why the bible study doesn't fit for me right now. It is more important I keep my focus on getting the boys to church every Sunday. Why? Because for the past year I believe our behavior has demonstrated to the boys we don't value going to church, and that is something that is not acceptable to me.
*Getting healthy. Why? Because I have factor 5, I'm overweight and I have just witnessed the devastating effects of what diabetes and stroke can do. If I skip a high school football game because I need to get a walk in, then that is what has to happen.
*Helping my mom and sister. Why? Because I love them, they are a priority to me and they need my help.
*Be an engaged mom and wife. Why? Because it's ever so clear to me what a blessing my marriage is, and since the Ausili's left, our social life has slowed down significantly. It's painfully clear that in the years to come, it will literally be Mike and I. Jay is a junior. I have 2 years left to be his momma. My time of influencing him is over (some may disagree with this but trust me, that ship has sailed), but I want to enjoy him, and be a present witness to how he evolves over the next 2 years. And Nick is going to keep me busy year round in sports. There may not be coming up for any air where he's concerned.
*Stay an active member in my book club. Why? Because it's the book club my mother formed and is a part of and books continue to bring me joy.
*Spend time with friends and family/trips to see the Ausili's. I have been intentional and purposeful in planning my trips to TX the next year. Why? Because I knew this first year with the Ausili's being gone would be very hard for me, and them. I have given myself permission both with my time and my money to visit them once every 3 -4 mos. The second part of the why factor with this is that I get my energy from my family and friends. People congregating in my home brings me joy.
*Work. Why did I even include work? Because my work is important. It sustains this family. It's a good job for me and to me.
*Work on my book. Yes, I'm writing a book with my sister. Why? Because I've wanted to for a LONG time and now is the time. Enough with my excuses for putting it off, and enough of the self defeating talk. If I miss an event, that does not fall into my Why(s) category, it's because I needed to stay home and write.
As I move forward, anything I am asked to do, I will ask myself if they fit into any of my why categories and if they don't, guess what, I'm not doing it.
*Making every reasonable attempt to go to church regularly. This is why the bible study doesn't fit for me right now. It is more important I keep my focus on getting the boys to church every Sunday. Why? Because for the past year I believe our behavior has demonstrated to the boys we don't value going to church, and that is something that is not acceptable to me.
*Getting healthy. Why? Because I have factor 5, I'm overweight and I have just witnessed the devastating effects of what diabetes and stroke can do. If I skip a high school football game because I need to get a walk in, then that is what has to happen.
*Helping my mom and sister. Why? Because I love them, they are a priority to me and they need my help.
*Be an engaged mom and wife. Why? Because it's ever so clear to me what a blessing my marriage is, and since the Ausili's left, our social life has slowed down significantly. It's painfully clear that in the years to come, it will literally be Mike and I. Jay is a junior. I have 2 years left to be his momma. My time of influencing him is over (some may disagree with this but trust me, that ship has sailed), but I want to enjoy him, and be a present witness to how he evolves over the next 2 years. And Nick is going to keep me busy year round in sports. There may not be coming up for any air where he's concerned.
*Stay an active member in my book club. Why? Because it's the book club my mother formed and is a part of and books continue to bring me joy.
*Spend time with friends and family/trips to see the Ausili's. I have been intentional and purposeful in planning my trips to TX the next year. Why? Because I knew this first year with the Ausili's being gone would be very hard for me, and them. I have given myself permission both with my time and my money to visit them once every 3 -4 mos. The second part of the why factor with this is that I get my energy from my family and friends. People congregating in my home brings me joy.
*Work. Why did I even include work? Because my work is important. It sustains this family. It's a good job for me and to me.
*Work on my book. Yes, I'm writing a book with my sister. Why? Because I've wanted to for a LONG time and now is the time. Enough with my excuses for putting it off, and enough of the self defeating talk. If I miss an event, that does not fall into my Why(s) category, it's because I needed to stay home and write.
As I move forward, anything I am asked to do, I will ask myself if they fit into any of my why categories and if they don't, guess what, I'm not doing it.
Thursday, September 13, 2018
Nick's love of fishing
Nick loves fishing. No, seriously, he obsesses over it. He talked about it incessantly, so much that I'm concerned over his prospects of ever finding a girlfriend who will enjoy listening to his fishing stories as much as Nick loves to tell them. Here's the thing though. My boy has a hobby, a good, healthy hobby. A hobby that brings him joy and it's an added bonus that he's really good at it. We are still frying fish! Last night Nick didn't have football practice so what did he do, he went fishing. I joined him for a bit and there was a couple who stopped and I heard them say, "Hi Nick, what did you catch tonight?" I had no idea who these people were but they clearly knew Nick and they did live somewhere in our neighborhood. I struck up a conversation with them and learned they met Nick on the lake, as their house is on the lake and they have a special needs son who often sits in the backyard. When Nick sees him he stops by on his kayak and strikes up a conversation with him. Those are the moments that make me smile and make me proud! When I drove Nick home he was sitting out the back of the hatchback with his pole. Apparently Nick is like "Norm on Cheers" because more people would wave at Nick and call him by his name as I drove him home! He's a real regular with the neighbors that live on the lake. Keep fishing, Nick, keep fishing! It truly does bring out the best in you.
Sunday, September 9, 2018
A bittersweet weekend
This weekend was good, like the kind of good that makes me warm and fuzzy. It was a rare weekend in that all four of us were home Friday night and Saturday night. Usually at least one night of the weekend Jay is with his buddies for "guys night." This weekend Central IL was still dealing with the effects from a tropical storm from the southern states, and the weather was rainy and chilly. There wasn't much to do so we went out to eat as a family on Friday night and Saturday night I cooked, Mike baked cookies and we ate together around the dinner table. Last night it had stopped raining but it was chilly. After we ate we went out to our deck and chatted together. I looked around the table and said a thank you prayer to God! I'm all to familiar with the fact that things change and soon my boys will spread their wings and won't be hanging out with us on Friday and Saturday nights. My heart still aches for Ausili's (this is the bittersweet part of the blog). I knew that if they lived in town they would have been out last night, enjoying the deck with the new chill in the air, laughing with us and lighting our first bon fire for the season, but they are not here. They are in TX, slowly but surely trying to adjust to their new normal. But I digress. My mom is doing so good too. She is talking, walking and has some movement back in her arm. I'm amazed at what God can do, how He takes the ashes and makes them into something beautiful. This morning at church a woman gave her testimony about her sick son. She said she found herself begging God for many things throughout that very dark time. Her son recovered and she said, "If I wasn't a beggar I wouldn't have been able to look back and see God's goodness." And I wanted to jump out of my seat and scream, YES! In my times of desperation, and there have been so many of them the last 2.5 years I begged God for so many things: clarity, healing, protection, direction and each and every time when the clouds dissipated and the sun came through I could see God's goodness all over my story. Some days I battle with fear, but many days I know I'm right on the edge of another miracle. God is good, all the time.
Monday, September 3, 2018
Four wheeling lesson
In January Jay rode his four wheeler and guess what, it didn't have any oil in it and he blew his engine. I have meant to blog about this but the past few months have been filled with my dad's unexpected death, his funeral and oh yeah, mom's stroke. I digress. Anyway Mike told Jay he would have to re-build his own engine. During the winter months I would find Jay on his laptop looking up parts, making parts lists. This spring our entire garage was set up with tables and parts everywhere. We spent our spring and summer tripping over kayaks, four wheelers and parts. When we reached this summer Jay had about had it. It was a really big deal for Jay to do this. He had to organize, plan and focus, and just when he thought he had everything he needed to get started, and that didn't even include building the engine, Mike would review his parts list and tell him he missed a few things. Jay would have to get his book out that came with his four wheeler and review it yet again. Jay would go back to the drawing board and keep adding to his never ending parts list. Obviously all of these parts cost money, a lot of money. Mike and I paid for his parts in exchange for Jay's free labor for Cornerstone. At one point this summer Jay was so worn down by the process that Mike and I gave Jay a choice, we could scrap the entire thing. We could sell his four wheeler as is, knowing we'd lose our shirt on it, and then Jay could work for Mike and Mike would pay him, or Jay could work for Mike, Mike would keep track of his hours, knowing Jay was "working off" his parts list. Jay opted to keep moving forward in the process. He wanted a running and working four wheeler. He worked for Mike hauling bunk beds up and down stairs at a sorority (during a season when the girls weren't there, bummer), in addition to several other jobs that weren't very favorable. About a week ago all the parts came in. Jay enlisted his grandfather's help, as building engines for John is like cocktail hour for me, very exciting! John and Jay spent 10 hours last Saturday rebuilding his engine. Jay spent this week tweaking a few things and tonight he finally got it to turn over and start. I was really proud of Mike and Jay. Mike wanted Jay to learn a lesson which in the end taught him the consequences of his actions, perseverance, a job well done knowing he completed something from start to finish. Mike likes his stuff cleaned up. He takes care of his things and I know it drove him crazy to have his garage in the condition it was in for 9 months. He kept at Jay because trust me Jay would have put this off, mostly because it was hard work and required a lot of focus. I think most dads would have given in and taken the four wheeler to a dealer and paid someone else to fix the mess we were in, but Mike kept with it and in the end demonstrated to his son what it felt like to see something through until the end. I give Jay a lot of credit too. He was presented with choices along this journey and every time he choose to keep moving forward to get the job done. He learned several hands on skills, not to mention the organizational skills he learned. He stuck it out until the end which honestly isn't something I'm really good at, so to see him do this at 16 makes me exceptionally proud of him!
Happenings
This is what happens when I don't blog consistently, I get a hodge podge of pictures and our happenings are random. The last few weeks have been really good. My mom is really rocking it. She is living independently and doing so well. My sister and mom spend their weekdays together and the time off from work has been just what my sister needed to regroup, refocus, balance and rest. I am so thankful for God's perfect timing.
On Aug 25 Kim and I and her kids went to visit dad's grave. On Aug. 23 he would have been 69 years old. There is not a day goes by that I don't think of him and miss him.
Just a lazy Saturday morning. Our dogs always make themselves comfortable. It doesn't matter whether or not they are invited or not.
Yesterday me, Kim and Katie got our floats out and floated around our lake. At times it was a bit more work than we anticipated. We were able to catch up with Nick and he tied us to his kayak and took us for a swirl! He's a good sport.
Nick spends his days fishing. He's obsessed! He fishes whenever he can and he's quite good at it (hence the picture of the large bass he caught). We end up having a lot of fish for dinner around our house.
And this happened! After 20 years of marriage and 15 years of living in our current home, we finally have an adult bed. Mike made it and I'm in awe of it. It's beautiful! I love my bedroom. We have window trim up, new carpet, and a new bed! I couldn't be happier about it.
It's been a nice labor day weekend. Mom came out with her friend, Pam. Kim and the kids were out. I went to the winery with Mary and John. I won't lie, I missed the Ausili's but I will continue to miss them, that won't change, even with time.
On Aug 25 Kim and I and her kids went to visit dad's grave. On Aug. 23 he would have been 69 years old. There is not a day goes by that I don't think of him and miss him.
Just a lazy Saturday morning. Our dogs always make themselves comfortable. It doesn't matter whether or not they are invited or not.
Yesterday me, Kim and Katie got our floats out and floated around our lake. At times it was a bit more work than we anticipated. We were able to catch up with Nick and he tied us to his kayak and took us for a swirl! He's a good sport.
Nick spends his days fishing. He's obsessed! He fishes whenever he can and he's quite good at it (hence the picture of the large bass he caught). We end up having a lot of fish for dinner around our house.
And this happened! After 20 years of marriage and 15 years of living in our current home, we finally have an adult bed. Mike made it and I'm in awe of it. It's beautiful! I love my bedroom. We have window trim up, new carpet, and a new bed! I couldn't be happier about it.
It's been a nice labor day weekend. Mom came out with her friend, Pam. Kim and the kids were out. I went to the winery with Mary and John. I won't lie, I missed the Ausili's but I will continue to miss them, that won't change, even with time.
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